Resources
Helpful Tools for Daily Life
Access fact sheets, pain and symptom trackers, lifestyle tips and guides created to help you manage sickle cell more confidently.
NCFM Sickle Cell Support Group
A self-paced, interactive platform designed to empower patients, caregivers and families with a deeper understanding of sickle cell disease…
- Understanding SCD
This comprehensive guide helps parents and caregivers navigate the unique challenges of supporting a child with sickle cell disease. Inside, you’ll…
- Living With Sickle Cell Disease
Published by the National Heart, Lung, and Blood Institute, this guide offers practical advice on staying healthy, preventing complications and planning…
- SCD Diagnosis & Treatment
Trusted by healthcare professionals, this resource outlines how sickle cell anemia is diagnosed and treated. From medications to blood transfusions..
Stay Informed With National Organizations
Sickle Cell Disease Association of America Inc.
The SCDAA promotes and connects patients to clinical trials, joined by 57 member organizations and affiliates across 30 states.
The Foundation for Sickle Cell Disease Research
Explore groundbreaking research, innovative treatments and more.
Centers for Disease Control and Prevention (CDC)
The CDC provides up-to-date information on sickle cell disease, including health tips, care guidelines, emergency preparedness and data on how the disease affects different communities.
Together, We Can Make a Difference
Join us in providing education, advocacy, compassionate care, and life-changing support for individuals and families affected by sickle cell disease across South Carolina.
